So its happened, you just got back from the doctor and the news wasn’t good. They have told you your child has Autism.
The new A-word.
I remember hearing these words and just feeling hollow inside. Sitting in my car and crying, because I felt so alone and helpless.
But you are NOT helpless. There are several things you can do to give your child a fighting chance.
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1) First Put Your Mask on First and Process What is Happening:
This is a hard pill to swallow. You might be feeling guilt, but don’t be. No one knows what causes Autism for sure. Personally I feel the reason they can’t figure it out is because there are more than one smoking gun. Whether its food, environment, vaccines, the list goes on of possible suspects.
Find someone to talk to. Sadly with Autism becoming more and more common, its kind of like cancer, some one knows someone who has a child with it. I also found online forums and facebook groups helpful.
2) Find Out What Services are Available Locally and Get on the Waitlist.
Talk to your doctor or public health nurse. Find out what services your province, state, school division, etc provides. Then get on their waitlist. The list are usually long, so its better to be on them as early as possible.
3) Find Out What Types of Tax Credits and Benefits You Qualify for.
Call your accountant and find out what kind of tax credits or benefits your family is entitled to. Also ask about back pay. Autism is considered a condition that is there at birth, you should be able to do some adjustments to your taxes and get some back pay. This extra money will come in handy to pay for therapies not covered by the government or your insurance plan.
4) Hit Your Local Library, or Amazon and Get Books on Autism.
Education is power. You’re not going to agree with every book you read. But I found the more I read about Autism the more I learned. Even the autobiographies, they would talk about their experience with different therapies and I was able to look them up on google and find more help.
5) Get a DAN! Doctor or Naturopath that has Experienced with Child with Autism.
While your child’s medical doctor is good for broken bones, and stuff like that, they are not always the best source when it comes to autism.
DAN!(Defeat Autism NOW!) practitioners are specially trained to deal with autism. They understand that other ailments your child may be experience are usually correlated. Even an experience Naturopath can offer gentle alternatives to help your child.
6) Educate Yourself on How Your Child’s Diet is Affecting Their Behavior.
Food affects people more than they think. Look into what might be affecting your child. For some kids gluten give them the feeling of being on opium, other kids its food colorings. Research and talk to your DAN! or Naturopath.
7) Look For a NAET Practitioner
NAET(Nambudripad’s Allergy Elimination Techniques) is a acupressure(no needles so don’t worry) therapy that helps reboot the body and to have it stop reacting poorly to certain allergens.
For example my son was terribly allergic to milk and gluten. 2 months working with our NAET practitioner, he can now eat both of them without any issue.
8) Learn about Early Learning.
Join the BrillKids Forum and look into there program Little Reader. Both my boys learned how to read using this program and it also helps expand vocabulary and labeling skills. Things some autistic children struggle with.
You can read more about these programs HERE. If you land up deciding this program is a fit for your child here is a coupon code for 10% off your order BKAFF21929.
What other tips do you have that I may have missed?
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As some my long term readers might already know, Wesley has been gluten and dairy free for as long as I can remember. Well actually we eliminated dairy from his diet when he was 15 months after a series of allergy test at the allergist. Then on suggestion of his naturopathic doctor, at the age of 2.5 years old we removed gluten.
Well once you get use to reading ingredients, figuring out secret industry names for gluten and dairy, it’s completely do able. Especially if they are removed before your child really knows what they are missing.
The problem comes when they are older. Birthday parties become a nightmare, playdate, family gathering. Will meaning family member or friend try and get something your child can have, only to find out that they don’t know the secret code that the industries use to hide these items in our food. Now you have to tell them, even after all their efforts your child can still not eat it.
Next thing you know, no one is inviting you over for meals anymore. Your child is not getting invited for sleepovers or birthday parties because the parents are worried they will feed your child something they shouldn’t. I had one family member confess to me she was worried she was going to kill him by accidentally feeding him the wrong thing. No one wants to be the parent to have to call an ambulance to pick up someone else’s child right?
7+ years later, I stumbled upon somethings very interesting while I was reading a book called Naturally Better: Dramatically Improve Your Child’s Life Naturally. I was introduced to something called NAET, aka NAMBUDRIPAD’S ALLERGY ELIMINATION TECHNIQUES.
Instantly I was on google learning as much as I could about this technique. Oddly enough, it seemed to have way more positive reviews than negative. Could it be true?
I started chatting about what I had discovered with my youngest son’s cranio sacral therapist. She told me one of the woman in my Facebook Attachment Parenting group had done NAET with her child and it worked. So I decided to contacted that woman via Facebook. I chatted with her for a little bit and everything she said seemed promising. Her son could not have any dairy or citrus, otherwise he’s get terrible blistering diaper rashes. After a few treatments with this woman he could eat both triggers and had no reaction.
So I made a phone call. As soon as I started talking to her, I was instantly reassured, this sound like the real thing. So I scheduled both boys for treatment.
Att our first appointment we tested the basic 15 items. To my understanding, these items have to be cleared for the body to run properly and before any other specific treatment to trigger allergies can be treated effectively. This does not mean you have to have 15 treatments first before starting, each person is different. Z reacted to 8 of the 15 and Wes reacted 6 of the 15.
In order to tell if your body reacts or doesn’t react the NAET practitioner did muscle testing on me while I held my son’s hand and he held a vile of the allergen. At first, I thought this was to much to believe, until my boys were holding a trigger for them and my arm turned to jello and I could not keep my arm up when the practitioner was pushing my arm.
You can read more about what NAET is and the process HERE.
Since starting our NAET sessions two and a half months ago, Wes was cleaned for his 6 of the Basic 15 he tested positive for. Then we started working on Gluten and Dairy. Gluten was a tough one. The first time we treated him for it, he had to avoid ANY contact with it for 25 hours after the treatment (which was fairly easy since he was gluten free already.) The following week we retested and he was not clear, so we would do a boost, and then we treated something else as well. Gluten took one treatment and 2 or 3 boost. Wes had tested positive for casein, whey, cheese, milk protein, basically anything dairy related. We treated him for casein and then did one boost and he cleared it. Best part was, we retested all the other dairy related items and he cleared them too.
We are also working on treating Wes’s reactions to immunizations, heavy metals, etc. He seems more focused now and is loving the freedom of trying new foods. This evening at a family birthday party, it was the first time since his 1st birthday he could participate in birthday cake. He was so delighted and everyone there was so happy to see him allowed to live! Auntie Kathe even negotiated him a second piece.
|Wes enjoying his first chocolate bar
Healthy Gluten/Dairy Free diet
I have been feeding my son a dairy free diet for almost 4 years and gluten free for 2.5 years. People always ask “What DOES he eat then?”
So here is how I go about it 🙂
Breakfast food options
– pancakes/waffles made with gluten free flours
– Chex cereal
– toast (gluten free)
– homemade gluten free muffins
– fresh fruit
– goats milk yogurt(new thing for us, some people can handle soy yogurt but my son can’t tolerated soy products and it’s really not that healthy for kids)
– usually left over dinners
– chicken, beef or pork cooked plain or with a gluten free sauce
– plain rice
– baked potatos
– any veggie steamed
– baked potatoes
– rice noodles with pasta sauce
– homemade soups
– homemade chili with tons of veggies
– tacos and salsa
– airpopped popcorn
– dried fruit
– raw fruits and veggies
– lays BBQ chips
– homemade cookies and cupcakes
– prepackaged gluten free cookies and cereal bars
I basically modify any recipe to fit his diet. I replace rice flour for regular flour. It taste a little “griddier” but not bad. Gluten free baking powder for regular. Rice or goats milk for cows milk.
If your looking for ideas for yourself or your child feel free to ask me 🙂 Ill try my best to help you if I can 🙂
Wesley and I spent the day at home together, while my hubby took the car to work. It is so nice to have a day off in the middle of the week and be able to spend one on one time with my son. Plus he likes to play hookie from daycare too.
First thing we got up and after breakfast we tried out the new wagon I got free on Kijiji. It worked great. We stopped at Giant Tiger to return some curtains. We landed up buying a DVD and cd about Kids safety, plus we got a free set of reusable sticker and cards about anatomy.
Then we walked to Superstore and got some basic groceries, and we walked home. When we got home I made Wes lunch and then we made some no bake cookies.
This is what we made 🙂 They taste better than they look, I promise. These no-bake cookies were childhood favourites of mine. So when I found out that you could purchase oats that were gluten free, I was so excited to make these for Wes. I clearly remember as a child my mom making these for me, and sneaking some while they dried on the wax paper.
Then we sat down and did some coloring. I’m really going to have to make this a regular thing as Wesley really struggles in this area. Really it is my fault, I never provided him enough coloring time. He just hated it before so it was hard. But he’s starting to enjoy it a bit more. His tutor had been working on teaching Wes how to write his letters, but the occupational therapist said we should work more on coloring and tracing letters for the time being. So we did some coloring together today 🙂
If I could have a do over when it comes to fine motor skills and penmanship I would have prioritized colouring time more.
5 Things I Wish I Had Done to Help my Preschoolers Penmanship
I would have introduced colouring utensils(crayons, markers, pencils crayons, chalk, etc) at a much younger age.
Purchased rolls of paper and done larger drawings with him to build up the muscles in his hands.
Worked on hanging from a bar and eventually teaching him to brachiate on an overhead ladder. This would have helped build strength in his hands. Check out Glenn Doman’s book,Fit Baby, Smart Baby, Your Baby!: From Birth to Age Six
Looked for one of those kiddie easels, and had him work with different mediums on an upright surface.
Spent more time outside drawing on the ground with sidewalk chalk.
We are also starting a reading/spelling program. But we’ll do that after nap I’m pooped.
Tonight I’m cooking chili! Hubby’s not crazy about it, but there are leftover steak skewers from yesterday. I just need to make a big pot of something so we can have frozen lunches. I spent way too much on food yesterday for dinner. I told hubby we have to stop splurging like that. I really hope that once I’m a WAHM I can manage to feed us good meals for less money. At least this chili will get a good run for its money, and I’m going to make some freezer meatballs too.
Last night I called Calvert School and talked to a teacher there. They were so helpful. I decided to put Wes in the kindergarten program. I was looking at the wrong assessment before, he is so ready for kindergarten!! Yeah! I haven’t ordered it yet, because I want to wait till after the Homeschooling convention here in Winnipeg, just to make sure there isn’t something I like better.
I also started printing out some stuff for our Hungry Caterpillar theme. I have to laminate(or macktak)some stuff first, but it should be good. I’m hoping he enjoys it.
Anyhow, I’m going to grab a nap and then clean and start dinner before hubby gets home.